Wednesday, July 21, 2010

?Graves disease?

So I finally got to see the endocrinologist today. She was very nice and answered our questions. However, she still did not officially diagnose me yet. I am to have yet another blood test to look for a specific gene or something that is only present in Graves disease. I think that's what she said; anyways, I am to have another blood test done like asap. She would also like to get my white cellcount, liver levels, etc before she puts me on medication. At this time, she does not feel that radioactive iodine is the way to go, because I already have ophthalmopathy and iodine may aggravate it. I am also to have thyroid ultrasound. She wants to check if there are nodules and she said it's something we will be monitoring. At this time, she does not believe that the chemo medications have anything to do with the thyroid. There are a couple of serious side effects of the medications she will give me, so as always, more blood work every few weeks. Plus I have to continue monitoring my energy level, avoid getting fever, sore throat, colds and watch for my eyes/skin turning yellow, which will indicate liver involvement. She does not believe that the medication will restore my eyes back to normal. She has deferred me to oculoplastics for anything related to the eye. So, back to more bloodwork, more scans and more meds. She thinks I may have to have another CT scan of the orbits in the future. So, that's the most recent update... sometimes I wonder why they don't just order one blood work to be done so that I don't have to keep going back. I have requested to get it done at Oakbrook because they are very good there.. always gets my vein at first try and only feels like an ant bite. Okay I'll post again when I get more results...

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